Charleigh Pollock has a neurological disorder called Batten disease that leaves her with recurring severe seizures and ...

The mom of 9-year-old Charleigh says the clinical criteria used is outdated and 'needs to be updated immediately' ...

Batten Disease expert baffled by BC's decision to cut funding to nine year old Charleigh Pollock for her life-sustaining ...

The news was welcomed by the nine-year-old’s family, who saying stopping the medication would hasten her death.

Researchers at Washington University School of Medicine in St. Louis have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic ...

While most parents of kindergartners are worried about their kids learning to read and playing well with others, Bryan and Beth Fugere of Shakopee are worried about enrolling not just one, but two ...

The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens. Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with ...

Charleigh's mom says she is hopeful but "very cautious" after hearing B.C.'s Ministry of Health will review the funding of a ...

Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with CLN3 Batten Disease in May 2022. The illness is a fatal neurological disorder that usually begins in childhood. The strain ...