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She Has A Rare Disease Called CLOVES Syndrome, And She's Sharing What Her Life Is Like
At the time, Klippel-Trenaunay syndrome was an umbrella ... countless viewers across TikTok about CLOVES syndrome. According to Boston Children's Hospital, "Congenital Lipomatous Overgrowth ...
pharmaphorum2d
Growing up different and not knowing why: My experience of rare vascular disorder KTS
She was in her late 20s when, after years of struggling with her mental health and self-medicating with alcohol, she was finally diagnosed with Klippel Trenaunay Syndrome (KTS). The diagnosis ...
Hindustan Times8y
On a limb and a prayer: Living with a rare disorder
Akshaj suffers from Klippel Trenaunay Syndrome (KTS), a rare genetic disorder ... Dr Rai explains that there are no known reasons why children are born with KTS. “It’s a rare disease ...
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Deep Vein Thrombosis in Klippel–Trénaunay Syndrome
This is pathognomonic for Klippel-Trénaunay syndrome (Figure). Color duplex examination demonstrated thrombosis of the fibular vein and gastrocnemius muscle veins. The patient was treated with an ...